I met a little boy, somewhere around 2002, with a mischievous sparkle in his eye and a plate full of traumatic history. He was three and a half, had very few words, but knew very well how to giggle. He was supposed to be in foster respite care with me for 10 days or so, but the second I met him, I felt something different. I knew he belonged, but I also knew he wasn’t my child. I called my best friend, now of 23 years, whom I met on a best friend blind date, and asked her to come over. The plan was to spend the next day together anyway, but I assured her that I wanted them to come right away. See, my soul knew that this boy was hers.
He was. They have loved him hard and loved him well over the past 16 years. They have all been through so much medically, emotionally, physically and spiritually. There is a terrible exhaustion from all of their experiences, especially advocating and fighting for things that should be obvious and no fight needed at all for anyone. Yet, her devotion has been perfect and beautiful and an example of grace that changes lives.
This sweet guy had so many terrible medical problems, and it only got worse over time. This guy’s spirit was infectiously adorable and funny. We haven’t lived near each other for years now, but we spent time early on schooling together, parenting together, accompanying each other to medical appointments, (the early beginnings of my career really,) venting, sharing, celebrating. For awhile we were a village like everyone needs and so many will never experience.
We vacationed together. I could write about cute stories of our adventures alone. He would pretend to play baseball and basketball with my ex-husband. He would bat his flirty eyes to request his favorite take out foods. He was a huge My Little Pony fan, loved video games and movies and making sound effects. He spent years thinking I could get him to Disney World so he would ask me for the ‘Disney Bus?’ He called our house ‘the party house’ I guess because between our families there were a lot of birthdays to celebrate, but we loved that he regularly requested to go to the ‘party house’. It got wild around here too! There was a lot of cake eaten, sometimes non edible things were consumed too…..he partied that way…..like consuming trampolines and pool noodles. He loved to play or watch our old Nintendo 64. He laughed a lot. He loved hot pink, and that is the color to tribute him.
The suffering for all of them, the commitment, the draining work, the joy, the positive difference they made, was non-stop. The pebble they tossed out encouraged others to adopt. Others were influenced and altered by their choices. They helped show people that you love who comes to you and who needs loving without hesitation. I’m profoundly honored, humbled and grateful for who they are and what they chose. And I got to witness it.
Yesterday his journey on this Earth ended. He’s free of pain and on to exciting new adventures…. maybe on Disney buses in Heaven or the ultimate party house.
My heart is so heavy for my best friend and her family. The pain in immense but there is relief to his suffering and that provides some relief to her Mama heart too. I’m sorry that I have contributed to her pain, but I’m not sorry I was a tiny piece to their puzzle.
I send all of the love, light, prayers and gratitude to them until I can wrap my arms around them after my daughter Madilyn’s graduation activities this weekend. I’ll go on Monday and hold her, or feed her or just cry with her. Today is also her birthday, and although the grief is something most people will never have to wrap their brains around, I hope she also has the gift of a little bit of peace, for his soul is free and lively and there is no more pain.
When we reunite with him, we’ll likely party hard….cake, Nintendo 64, pool noodles and all.
He knew love in this life. They gave that to him. Great work guys. You saw him through it all.